LTTLEWYS'S http://www.lttlewys.com The truth about organized chaos, the reality is... Sat, 19 Jul 2014 04:37:26 +0000 en-US hourly 1 http://wordpress.org/?v=3.9.2 YES… You Can Rely on Me http://www.lttlewys.com/jasonmrazspreadyes/ http://www.lttlewys.com/jasonmrazspreadyes/#comments Sat, 19 Jul 2014 04:37:26 +0000 http://www.lttlewys.com/?p=2289

Categories: Blogging, Community, Friends, MISC, Music, Randomness, sponsored, twitter

 I am doing something today, that I don’t normally do…. I am writing this post!! Ok, yea, it’s been awhile… seriously! However, this post is different, in that it’s sponsored. Yes, you read that right and while it’s something I … Read More

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 I am doing something today, that I don’t normally do…. I am writing this post!! Ok, yea, it’s been awhile… seriously! However, this post is different, in that it’s sponsored. Yes, you read that right and while it’s something I rarely do, I do occasionally do!! As you know, this doesn’t change a thing… the thoughts, opinions and words are all my own. Consider yourselves disclosed!!

Jason_Socials_YesAvilnow_YT_2120x1192_070914

Now, that we have that out of the way, let me share with you some amazingness!! I was asked to share some thoughts on Jason Mraz and his new album YES! I Style: "70's look"have a crazy and wild crush on this lovely man. Well, not him ( I’m not opposed to krushing on him, just his music got me first) just really, his MUSIC!!

I love love music, all different types, my playlists and all my songs are an eclectic, frenzic mess. Actually, since it’s me, I call my music tastes Organized Chaos!! And, Mr. Mraz plays in several of my playlists and after listening to his ENTIRE album, I can see that I am going to making some new additions to several of my lists.

Available on Itunes and you will see below, I’ve made it super easy for you to connect, share and see what else Mr. Mraz is doing!! He shares tons of other info, from his tours, his appearances and just his life.  It’s rather fascinating!!  It is rather amazing to see him share his passion and he is very passionate and humble and charming and… I could go on for days, please click a linky below and see for yourself, you will not be disappointed!!

http://facebook.com/jasonmraz

http://twitter.com/jason_mraz

http://instagram.com/jason_mraz

http://jasonmraz.tumblr.com/

https://plus.google.com/+JasonMraz

http://youtube.com/jasonmraz (official label channel)

http://youtube.com/theofficialjasonmraz (official personal/documentary channel)

Now, his new album, YES.. it’s pretty fantastic, it’s wild and lovely and speaks to me!! I have been listening to the album pretty much all day and had to share my favourite song!!

“You Can Rely on Me”  This song really hit me, touched me!! Jason is very poignant and passionate ( he is with all his songs) I love the entire, album, really.. this one just spoke a little louder to me!! Especially, watching not a carefully crafted video telling a story, instead, we get to see Jason, singing, just singing. Not just singing, but weaving his story and music together, relaxed and smiling. You feel the power and love shining through!

Take a listen, buy the album and check out #SpreadYes on the interwebz!! And, if you get a chance to see this amazing man… do it!!

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Happy Anniversary, #BewbLuv http://www.lttlewys.com/happy-anniversary-bewbluv/ http://www.lttlewys.com/happy-anniversary-bewbluv/#comments Sat, 22 Feb 2014 20:34:13 +0000 http://www.lttlewys.com/?p=2279

Categories: bewbluv, Breast Cancer, Cancer, Community, Friends

Yesterday was an anniversary of sorts!! I know most people would tell me to celebrate and well, that is tempting! I have a lot to celebrate and to be grateful for.  Only this is a bittersweet day….  One year ago, … Read More

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Yesterday was an anniversary of sorts!! I know most people would tell me to celebrate and well, that is tempting! I have a lot to celebrate and to be grateful for.  Only this is a bittersweet day….

 One year ago, while in NY celebrating Social Media Week with all my friends, I was actually sitting in Dr. AKME’s office.   Getting my clear check! This was my final blood draw, my final mammogram and the last time to use the horrid port still in my chest!!

It had been almost a year to the day when I discovered Morte while on a conference trip to Chicago!!

Chicago Feb 2012

Chicago Feb 2012

And, in the blink of an eye, I was battling, fighting and my whole world was spun! Then, it was over and I was shedding the side effects of chemo, I was starting again, I was slowly reclaiming my life back from the whole #BewbLuv journey.

A few nail biting hours later and #BewbLuv was OVER. That’s right, the first stage of this changed life of mine was starting.  It’s very strange and surreal feeling.  This weight was lifted and the fog was clearing and I suddenly found myself in a world that was foreign.

New York Feb 2013

New York Feb 2013

I didn’t know how to feel, I still don’t know how to feel! A good friend of mine, was quick to tell me all throughout #bewbluv and is still telling me, I am not my cancer. I am NOT my cancer.

It’s true, I am not, my cancer.  Only, it became a catalyst of sorts.  I am not the same person I was last year or even the year before.  Of course, we are all constantly changing, never the same people from day to day.  The changes I see in myself are all tied to my cancer, the good, the bad and the krazy.  The #BewbLuv journey has profoundly and significantly changed me.  And, I have discovered that while the disease is gone, it’s not over. It never will be, not only do I carry the scars, I carry a new perspective on humanity, a coloured view of the World and my place in it.

Like most major experiences, in one’s life this experience has left me befuddled and confused and happy.  Funny, right, HAPPY, it’s true, though, I am happy and grateful. Add into the mix the residual side effects of the chemo, and I struggle each day to know who I am.  Somedays, I am angry, somedays I am giddy and while, I am not lost exactly, I am not on a specific path and spend a good deal of time getting comfortable and confident with the person I am becoming.  AWKWARD

I know all my friends will be sending me well wishes and congratulations for my new anniversary! And, for that I am so grateful! You all are wonderful and I am honoured for your support and encouragement. I know for a fact that without you, I would not have done as well as I did, I would not have been as strong and courageous as I was without you!!  Thank you

Phoenix Feb 2014

Phoenix Feb 2014

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A Love Affair, It’s All in the Secret Sauce http://www.lttlewys.com/a-love-affair-its-all-in-the-secret-sauce/ http://www.lttlewys.com/a-love-affair-its-all-in-the-secret-sauce/#comments Tue, 18 Jun 2013 17:16:08 +0000 http://www.lttlewys.com/?p=2192

Categories: Blogging, Business, Community, customer service, food, Friends, marketing, Me, Social Media, twitter

Soo, yesterday was an Anniversary of sorts for me.  More specifically my #Bomberversary!! What you don’t celebrate the day you found an amazing place to grab a burger? This is only partially about the amazing burgers & fries and OMG, … Read More

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Soo, yesterday was an Anniversary of sorts for me.  More specifically my #Bomberversary!! What you don’t celebrate the day you found an amazing place to grab a burger? This is only partially about the amazing burgers & fries and OMG, CHEESE CURDS!!!

Yes, they are REALLY Good!!

Yes, they are REALLY Good!!

I found AJ Bombers a few years ago, when friends of mine posted total food porn from there and when I say I found them, I mean I discovered them on Twitter! At the time I was living in California and had no idea if I would ever visit Milwaukee! Yet, the Bombers Crew happily tweeted at me and our love affair began!! We had fun and silly convos as is the personality at Bombers!

Then last year, on my epic #WestmovesEast trip, I built into my trip a side trip, coz really what’s a few more hours in the car, to visit this amazing place?? TOTALLY WORTH IT!! OMG, they totally took care of us!!

My first visit!! Great Food and Excellent Company!!

My first visit!! Great Food and Excellent Company!!

The Crew felt we should try the ENTIRE menu!!

The Crew felt we should try the ENTIRE menu!!

 

While, the food is drool worthy and obviously, I have more than a passing addiction affection for Bombers, really that’s not the point here.  Nor is my newly discovered luv affair with Cheese Curds! Here it is in a p-nut shell, they CARE!

Yup, the guys that run the joint ( I have recently discovered they also, run 5 other places in & around Milwaukee) have discovered the Secret Sauce.  They hire the right people, they hire the people that get what they do, that they aren’t just slamming down a burger in front of someone, they are creating an experience!

Me, being me, was curious if they really GOT it… so I tried another of their restaurants and guess what, same experience!! Amazing food and mind-blowing service! I encountered them again at a Social Media Club Milwaukee event where they sponsored the food, they didn’t just drop off food and bail, a few minutes was spent greeting people and making sure things were all good with an obvious dash of humor. tots

Then when they came back to pick up everything, more time was taken to greet and meet people, check how the food was.  Actually, this is where I finally met The Man behind the Bomb, Joe Sorge!!

Would I be as in love with Bombers if they hadn’t taken the time to develop the relationship? Probably not! Would I keep going back if the people there hadn’t been so welcoming? Nope! The very first time I walked in, it was like walking into my favourite chocolate store, they welcomed me with open arms and freshly fried curds! And, every single time after that, I was greeted with the same enthusiasm.  My visits extended beyond great food.  It’s obvious the crew over there gets the “hire for culture, train for skills”

Every single visit is unique yet the quality of service is the same!  Even when they know you, they still make sure your experience is the best it can be! Doesn’t matter if it’s the first or the hundredth, there is that magical element of care and time! His team, takes the time to develop and build relationships with customers. That extends to online! Yes, I have had conversations with them on Twitter while sitting and eating!!

 

 

Very few companies hire for the fit, those that are, have spent the time defining the company strategy and brand voice  and lead with a strong internal culture that flows to the customer experience.  This type of open communication is cultivated and magical.  For companies to succeed in today’s world of Social Business it is imperative to embrace it or lose customers.  Finding a place on Social networks that is so deeply aligned with offline presence will be leading the way for more and more companies.  Customers are going to be looking for that relationship and care.  I applaud the team behind AJ Bombers for setting such a high bar of excellence and realizing that not only feeding their people well is top priority but cultivating their customer relationships is just as important!!

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Quick Instagram that… Or NOT? http://www.lttlewys.com/quick-instagram-that-or-not/ http://www.lttlewys.com/quick-instagram-that-or-not/#comments Tue, 11 Jun 2013 20:05:12 +0000 http://www.lttlewys.com/?p=2181

Categories: Blogging, Business, Community, Friends, marketing, Randomness, Social Media, twitter

This pic was snapped of me, not unusual given my line of work and my propensity to enjoy being out at events… but this one…. Was snapped, randomly, by someone I don’t know, while I was out walking on the … Read More

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This pic was snapped of me, not unusual given my line of work and my propensity to enjoy being out at events… but this one….

creepy

Was snapped, randomly, by someone I don’t know, while I was out walking on the street to lunch and then posted to a friends FB wall, I wasn’t tagged or even identified.  To say that I was creeped out is an understatement, horrified is pretty apt!!

Awkward

Then, I stopped to think about it… was my privacy violated? Yea.. kinda, more than I am normally comfortable with. Only, the guy that snapped the pic, was teasing his friend, my feelings or even myself didn’t come into his thoughts on this.  He didn’t consider the full ramifications of what he was doing.  How often do you snap a random pic and it has people in it that you don’t know and then post it??  Is that the same thing?

In the world of “Quick Instagram that sh*t” are we considering the privacy of others? My Golden Rule: If I don’t want it to public, don’t put it on Social!! If I’m out in a public place, does that mean I am fair game for being in YOUR picture or FourSquare checkin without my consent? ( I, do have 4sq rules, I don’t check in where I sleep or live) But, is my rule applicable to others? Should we now expect to have things posted without our permission?

Take for instance, the woman who posted a pic of a man, she was overhearing on the train boasting of his private life, she morally objected to his lifestyle and decided to be judge & jury and declare public shaming as the punishment!! What gave her that right? Have we, as a society crossed the line?

This is a huge area, and this is the first time I have been confronted with this… I am in a quandary, I make my life public, but that should be my choice with my rulez!!  I know what is appropriate and I am careful about what I post, share about the people I am with (Ohh, I may tease Sam that I’m going to share certain pics).  I like to think I am respectful, I wouldn’t share anything, I wouldn’t want shared.

Obviously, I have more questions then any answers, this is a huge grey area and very situational! For me,  I have this horrible, violated feeling in my stomach and now I am asking you….

Where are the lines?

Do you have rules?

*BTW, I was on my way to a fab lunch with a really good friend, he has graciously allowed me to borrow the pic from his Facebook.  He was a little creeped out, too!!

 

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Not Quite How I was Planning My Next Tattoo and #BewbLuv Moves Forward http://www.lttlewys.com/not-quite-how-i-was-planning-my-next-tattoo-and-bewbluv-moves-forward/ http://www.lttlewys.com/not-quite-how-i-was-planning-my-next-tattoo-and-bewbluv-moves-forward/#comments Thu, 07 Mar 2013 15:32:51 +0000 http://www.lttlewys.com/?p=2164

Categories: bewbluv, Breast Cancer, Business, Cancer, Community, Conferences, Friends, Me, travel

Soo, a few weeks ago, I headed back to NY… technically I was there for Social Media week and #cmgrUN! And they were awesome! I will be writing about #cmgrUN over on My Community Manager! The trip to NY also, … Read More

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Yup, that's a whole group of #cmgr's throwin the #HashTag down!!

Yup, that’s a whole group of #cmgr’s throwin the #HashTag down!!

Soo, a few weeks ago, I headed back to NY… technically I was there for Social Media week and #cmgrUN! And they were awesome! I will be writing about #cmgrUN over on My Community Manager! The trip to NY also, included my check up appointment for my bewbs! Deep Breath

I procrastinated making my appointment, dreaded that call.. it had been almost 60days since I stopped the chemo.  My body had almost stopped hating me for injecting all the horrible drugs, my war with food was mostly over and I just needed Dr. AKME to sign off, to give me magical words…

Only, it turns out there are no magical words. Once you have CANCER, you are always at risk, there is no magical phrase that makes it better.  I move from patient to survivor. I am not ok with this.  There are no good words for any of this.  I heard words, like negative, benign, recurrence, chances are… not you are cured, this is over.  *sigh*

So, the appointment, went well… I have gained back most of the weight lost thanks to the lovely chemo and eating only scrambled eggs and Ben and Jerry’s for months.  They took the blood, did the mammogram and those tests came back benign negative!! WooT! I knew all this, I knew my surgeon did a fantastic job and got all the visible cancer.  And, she even managed to keep the scars loverly and non-visible! Dr. AKME admired her work and even mentioned how symmetrical the girls are.  I know, all superficial but for me, that was good to hear after months of looking at my Chemo ravaged body!!! Did you see, I even haz hair!!!

Special thanks, to Jay Bryant for this amazing pic!!

Special thanks, to Jay Bryant for this amazing pic!!

Now, what’s next… Radiation!! For a whole 24hours, I thought I wasn’t going to have to do this, I thought, I was done.  Only, I was a bit premature in this thinking.  With my type of cancer, my diagnosis and my age… radiation is a must!! Why? Coz, of my age, coz of the type of cancer! Upside….

The radiation offices have this

How can you dislike a Dr. office that has this!!

How can you dislike a Dr. office that has this!!

I was in awe and shock after walking into the offices buried deep down in the Financial District, after the horrors of my mammogram ( that is a whole nother story) I was leery and a little bit bitter when I arrived.  However, the staff… AMAZING, the offices, GORGEOUS, my new Dr. and Tech, there are no words!! And, y’all know me, I am not frequently speechless.  I’m going to call new Dr, Dr. RAD… she sat me down, laid it out for me.  She told me I wasn’t special.  The statistics of recurrence not in my favor.  I needed to start radiation.  Good news, I don’t have to have much and the side-effects are minimal.  In fact, only 33 days.  Not such a random number, it’s every day for 10min.  And, they get me there. They go above and beyond to make you comfortable, to make the experience painless and completely tailored to you. It’s all about the patient!!

This was waiting for me, it was soft & comfy and perfect!!

This was waiting for me, it was soft & comfy and perfect!!

So much so, they were able to do the initial set up while I was there.  Dr. RAD sent me off for coffee and when I came back, the Tech was able to get me in, take pics, give me my tattoos! Yup, I was put into this machine, I was x-ray’d and tattooed*! They are goin to focus the radiation where Morte was and then my lymph nodes where minute cancerous cells were found! This will, hopefully, prevent recurrence!!

Two itty bitty tattoo dots where the radiation rays will focus!!

Two itty bitty tattoo dots where the radiation rays will focus!!

MRI machine, this will help them focus radiation

MRI machine, this will help them focus radiation

 

 

 

 

 

 

So… this week, I will be in Austin attending #SXSWi with @Nestivity and @Rawporter! Next week, I will be starting a different gig, ya more about that later!! While, I am looking for a place to live in NY starting the first of April.

*This was not how or where, I was planning on getting my second tattoo! However, they do look like freckles and I haz those, so I’m not going to count these, I have decided!! So, I am still planning for my 2nd tattoo!

 

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Clients, Apps and a New Town…Crazy Week Ahead!! http://www.lttlewys.com/clients-apps-and-a-new-town-crazy-week-ahead/ http://www.lttlewys.com/clients-apps-and-a-new-town-crazy-week-ahead/#comments Mon, 04 Mar 2013 18:06:48 +0000 http://www.lttlewys.com/?p=2157

Categories: Blogging, Business, Community, Conferences, customer service, Friends, Social Media, start up

I’m in Austin.  Yea, that’s Austin, Texas.  I know, I know, what in the world? Well, I have an amazing friend and he offered me a place to crash and next week, Austin will be once again hosting the biggest … Read More

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I’m in Austin.  Yea, that’s Austin, Texas.  I know, I know, what in the world? Well, I have an amazing friend and he offered me a place to crash and next week, Austin will be once again hosting the biggest interactive conference of the year.  So, it would seem fortuitous that I happen to be here!

Austin in the Morning!!

Austin in the Morning!!

I have been combing the #SXSW & #SXSWi hashtags for the last couple of weeks, to see who is going to be heading into town, which start ups are going to launch here! It’s quite the list I have!!

This year, I will be working with two different companies! What does that mean? Well, let me share with you the two companies…

Rawporter.  A fairly new company that had the foresight to see where social and #citizenjournalism are colliding and have created a way for the two to merge.  Rawporter is a way for you to share your pictures & videos and have them be watermarked and protected for you!! This means no more stealing borrowing of your pictures from Twitter or Facebook( which is illegal)!! Even better, your pictures can be purchased!! Flipside, looking for a particular picture? Do a quick search and find what you are looking for, purchase and easy peasy!! Pictures can be verified within the apps geo-location settings! Sounds cool, rite? It is! I spent quite a bit of time with the co-counders, Rob & Kevin and they are pretty awesomesauce!! Currently, looking for funding, they have brought me on to help with their Social and Marketing.  Look in a few weeks as we implement an amazing intern program!! We, also, have some fun things planned here in Austin as the whole team is headed in!!

My second client, Nestivity (make sure you click over and reserve your name)! A very cool new tool, coming out!! It will create “Nests” within your community and give you a clear, easier path to connect, engage and respond to people in your nests!! They are doing a webcast, March 5th, pre- SXSWi and will be showing demos! I’m pretty excited about this, and looking forward to sharing all about them while in Austin!!

As usual with conference prep, I have checked with people coming in, set up my calendar and checked my favourite apps.  This year, in addition to foursquare, I will be using Trendr! I fully admit, Linkedin is my weakest link and also, an incredibly powerful tool that I underutilize.  Trendr, will use my Li account and notify me of people that are close and then offer to connect us, OFFLINE!! Really awesome, rite? Trendr is currently working a Global campaign called #Meet2013! Check it out, download the app and meet away!!

Okay, so the apps, I have….

I have a plan and a strategy and the biggest thing I will be total flexible. I think that is the key to being at #SXSWi, being flexible.  I am really looking forward to being there with my Rawporter Team and the team from Nestivity!!

Which apps are you using?

 

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Job Hunting, Resume Not Needed http://www.lttlewys.com/job-hunting-resume-not-needed/ http://www.lttlewys.com/job-hunting-resume-not-needed/#comments Thu, 31 Jan 2013 20:20:57 +0000 http://www.lttlewys.com/?p=2146

Categories: Blogging, Business, Community, marketing, Me, Social Media, twitter

I popped into #Tchat last nite as I’m wont to do, it’s a great chat with an amazing community, hosted by a wonderful friend!! The tweet that caught my eye was about paper resumes and job hunting.  Well, I’m job … Read More

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I popped into #Tchat last nite as I’m wont to do, it’s a great chat with an amazing community, hosted by a wonderful friend!! The tweet that caught my eye was about paper resumes and job hunting.  Well, I’m job hunting and not doing a traditional resume!!

Turns out I’m not alone, Vala Afshar is seeking a marketer and he is solely using Twitter to get his applicants, I don’t know if he is going to be requiring a paper resume later on, I do know he is going to blog about his method and findings and I am curious to see what the end result is….  I really like this method.

This is "Old School" found @Offsite in NY

This is “Old School” found @Offsite in NY

This may not work for everyone or even every business, traditional methods may still work.  Only, I am no longer traditional and neither are many of my cohorts! We are starting to see this more and more, however it is still so new that most people are perplexed by the idea of a new digital resume.

In chatting with a friend, we have discussed this, labeling it “Digital Footprint”  My resume is completely online and easily found with several platforms that allow me to group everything together!! Check out my About.Me or my Twylah page…there you find my twitter, Facebook, blog and even my LinkedIn.  My reputation, my influence and my capabilities can all be found, weighted and measured with just a few clicks and waves of your mouse!!

However, I think it’s a little easier than that… Everyone acknowledges the different platforms, each platform needs to treat each Community & Audience differently.  Your use of each platform and your presence there should fit the needs of your brand, YOU, what your message is, level of engagement and interaction.  Keep in mind, we are talking only digital persona, a single dimension, the REAL person you can’t really get to know without some face time!! That being said… For most people, you can really get a good indepth glimpse of someone by completing the “Social Trifecta”

Borrowed from GrowMap.com

Borrowed from GrowMap.com

Sounds like some sort of Mob hit, rite?? Nah… easy enough, we know most people are on Twitter, Facebook and LinkedIn.  Looking at those three platforms as follows:

  • Twitter- conversations, sharing content, in-depth discussions via various TwitterChats (List of my favs)
  • Facebook- Sharing pictures, family and funnies, share content, keeping up with friends and family personal accomplishments & happenings
  • LinkedIn-Professional accomplishments, share content, online resume

Generally, by connecting with a person on all three platforms, you will get a very good idea of who a person is, learn about the dynamics that makes up their Social Footprint.  Granted, we all use Social differently and this theory works for most people but not all.  You are going to get that person that shares the same thing, at the same time across all three platforms or the person who keeps personal completely offline.  Spend some time, learn what you can on those platforms.

I digress, back to the paper resume, we are in a Digital World, companies are in transition learning that hiring people for their skillz isn’t the best thing, hire for fit and train.  You want your company to be Social, internally and externally, look in the space where people are being successful at being and doing social, choose from that sandbox.  For me, I’m a Social Gurl and surviving in the Digital World.

 

 

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The End of #BewbLuv… Sorta http://www.lttlewys.com/the-end-of-bewbluv-sorta/ http://www.lttlewys.com/the-end-of-bewbluv-sorta/#comments Tue, 15 Jan 2013 12:14:14 +0000 http://www.lttlewys.com/?p=2137

Categories: bewbluv, Breast Cancer, Business, Cancer, Community, Family, Friends, Me

As promised, here is the down, dirty and ugly of the last several months!! Once in NY and finally getting into a treatment program, new doctor and restarting Chemo. It all went pretty fast. By fast, I mean, I consistently … Read More

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As promised, here is the down, dirty and ugly of the last several months!! Once in NY and finally getting into a treatment program, new doctor and restarting Chemo. It all went pretty fast. By fast, I mean, I consistently got sicker and sicker!!

The Dr. in NY, I’ll call her Dr. Almost Killed Me but Didn’t Mean It or Dr. AkMe for short was brillz!! I went from the not going to help you at all hospital to the amazing wonderful Ralph Lauren Breast Cancer Center! Where everyone was nice, remembered me, bent over backwards to help or even just empathize while not being pitying or condescending!!

Dr. AkMe changed up my treatments a little, I was originally scheduled for 2 differ chemo treatments( that means 4 injections of 2 different types of medicines) over 4mos and she finished the first treatment with no changes, she changed the second treatment a little to accommodate for my health.  See, I totally, am an over achiever, I really rocked all the side affects of chemo!! YEA ME! That meant, I was sick as a dog, well, actually sicker…. Treatment was fast-tracked ( That was my bright idea, I don’t recommend it) So, I went to treatment every other week with blood work every week.  I steadily lost 5lbs each week, a concern for Dr. AkMe not so much for me.  It was only at the end, when you could count my ribs that the loosing weight became an issue.  My immune system consistently crashed.  That was to be expected and once again I felt the need to over achieve and made sure mine barely registered!! *sigh*  I was consistently fighting not only keeping any food down but also, dehydration.  Then the fight, got harder…

The second round of chemo was meant to attack my bone marrow and sure as sh*t, it totally did, so while I had finally stopped throwing up ALL the time, now I was dealing with excruciating pain in my joints and bones! Fortunately, Dr. AkMe anticipated this (she is really smart) and upped my pain meds.  During all this, I was pretty much on lock-down except for the horrifying Cab rides to treatment!! By the way, Cabbies totally stop FAST when you tell them you have to throw up!!

I realize now, I can throw in my quirky sense of humour and even smile.  However, at that time… not only was I struggling with being so incredibly, physically sick…. it ( the Chemo, being Sick) had started to affect my mind, my spirit.  I struggled on a daily basis with memory loss, crying jags and the occasional temper tantrum.  I was consistently forgetting things, conversations and since I basically slept 20hours a day I was up at odd hours.  Not to mention, I was pretty much confined to bed, since I was totally doped on pain meds or nauseous or just plain to weak!! I really didn’t want to talk to people at all.

I know and felt all the concern from all of you, your thoughts and your respectfulness of trying to find out how to help without overstepping and THANK YOU!! I am humbled, honoured and overwhelmed with all of you.  Altho, during those dark months, I was consistently angry and bitter at you.  I didn’t want to share any of that with you, not until it was ME and not the DRUGS.  Yes, I was on so much medication that I wasn’t sure anymore what was Sparkly me and what was Hideous me.  I resented your health, your happy lives and how things moved forward for you while I was stuck, consumed with Doctors, drugs and the failings of my body & mind! I wrestled with feelings of shame, remorse and bitterness constantly. And, let’s not forget the WHINING! I was so disgusted with myself, my body and my lack of being able to see the end, So much so, that I walked away from everyone.

After the last treatment, I left NY.  I needed a warmer place where I wouldn’t be tempted to go out and socialize once I started to feel better ( We all know that I totally would have, too).  I needed to get my head back.  I didn’t wanted to leave at all, leaving felt like failure.  It was necessary, I wasn’t in a good place and I was completely unemployed and living on my savings.  And, go figure, Cancer is freakin’ expensive!! Even with all the help from Ralph Lauren.

I was struggling with who I am, trying to figure out what I wanted to do and reconcille myself to the lost period.  I needed first to sleep for weeks and work the rest of the drugs out of my system.  I did that.  I managed to end my war with food and start eating again.  Some foods still make me nauseous, others don’t taste right and some I just find icky.  But, we are happy together again! And, Hullo COFFEE!!  That’s right, I was off coffee.  That was most sad.

I wasn’t ready to share my story.  I wasn’t ready to see where you are with your lives.  I wasn’t ready to make any decisions.  Now, I am ready to share my story.  I am loving where all your lives have taken you.  The decisions are still hard.  I still get angry.  I still have gaps in my memory or can’t remember something I know, I know.  And, basically, all of my plans, hopes and wants have changed and I don’t know who I am.  The Cancer & treatment, took over my life, me.  I fought it and denied it but it did anyways.  Saving my Bewbs became all consuming, so much so it became who I am.  I don’t want to be that person.  I will always be a Cancer survivor, in fact, last year will become a defining year in my life.  Only, instead of Breast Cancer defining me, I am going define its role in my life.  I am going to continue to write about it, support those who need it and advocate for foundations that are supporting this community of brave women and their families!

Lucky for me, I am well loved.  Not only am I loved but I am loved by extraordinary people.  These people, my friends, most I consider my family, know ME.  They are stepping up and showing me who I am, that I am ok and holding my hand while I dip my toes back into the world of the living.  Well, I was dipping my toes then just decided to dive right back in by attending #NMX and #CES!!

What’s next?? Several things… I am job hunting, looking for a community management role somewhere. I go back to Dr. AkMe for a check up.  I probably don’t need any more treatment but may need to take medication for the next few years to prevent the Cancer from coming back.  I will be heading back to New York.  I am back partnering with Tim McDonald and MyCommunityManager, producing our #cmgrUN conference series for 2013.  I am also, working with Sam Fiorella and Danny Brown with their new book Influence Marketing launch/tour in May!!

If you need a quick catch up… go here and here!!

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Getting My Social Back via #NMX http://www.lttlewys.com/getting-my-social-back-via-nmx/ http://www.lttlewys.com/getting-my-social-back-via-nmx/#comments Mon, 14 Jan 2013 19:57:52 +0000 http://www.lttlewys.com/?p=2122

Categories: Uncategorized

Soooo, what’s a girl to do when wavering about getting back into something that was a passion and is no longer??? She attends #NMX, of course!!! I completely and utterly shocked several people, after being offline for the last several … Read More

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Soooo, what’s a girl to do when wavering about getting back into something that was a passion and is no longer??? She attends #NMX, of course!!!

I completely and utterly shocked several people, after being offline for the last several months (I’ll tell you bout that later)!! Frankly, I shocked myself, I had no intention of attending #NMX.  I am thinking I owe Sam a very huge Thank You!! I have been slowly working my way back online, wavering back and forth as to whether I wanted to commit or switch careers.  I just wasn’t feeling passionate or interested in being Social or being in the SocialVerse.

Totally crazy and amazing!!! If you are ever doubting what you do, what you love or are passionate about…. go hang out with people that share your passion!! Find those people that are excited and just enjoy the conversation, energy and creativity flowing around you!!

This year, was my second #NMX and was soo much better then before.  I’ve been trying to figure out why.  It’s possible that I have changed so much from last year, this year, I was definitely a lot lost or perhaps, it was the people… I met so many new people!! Yes, many that were there speaking or attending, I knew and had met, talked to, shared meals with and were happy to connect again!! Yet, so many, I hadn’t met, had no idea who they were and whoa, did I make some amazing connects!!!

tinu

Happy Girl with @samfiorella, @Milaspage & @tinu

As what normally happens at a Social Conference, I didn’t make a lot of sessions!! Each morning, I went through the schedule and chose sessions from topic or speaker and tried to make those.  There weren’t a lot of sessions that I wanted to sit in on based on the topic, but the speakers… there were several!! Most I had not seen speak before and was excited about that and then there were my favs that I love hearing speak.  Even doing that, I only made it to couple of sessions!! Mostly coz I got drawn into some amazing conversations, meeting people…

That then led to small and intimate dinners or meandering down, err up? to Starbucks to gather some more details!! Luv that, I still made it to the networking events, but always had meals with four or five people!! It was these little intimate dinners/coffees that not only was biz discussed but interests and sense of humour quirks really came out!!  I even spent an amazing dinner with Diane and Steve Brogan from Mom Pop Wow!!

The amazing @Hashtracking making sure I am hashtagging #NMX!!

The amazing @Hashtracking making sure I am hashtagging #NMX!!

Jure & I with his newly acquired "Wilson"from @Readz!!

Jure & I with his newly acquired “Wilson”from @Readz!!

Amazing Readz Party with Anne Weiskopf, Sam Fiorella, Jen, Phil Hollows

Amazing Readz Party with Anne Weiskopf, Sam Fiorella, Jen, Phil Hollows

 

 

 

 

 

 

I totally borrowed all these pics!! I discovered that I really didn’t take that many, except this really cool one of Wine!! Thanks, Readz for hosting such a great event and Anne, my new Bestie, for dragging me along!!

wine

 

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Help Needed, Please Don’t Apply http://www.lttlewys.com/help-needed-please-dont-apply/ http://www.lttlewys.com/help-needed-please-dont-apply/#comments Tue, 28 Aug 2012 03:23:51 +0000 http://www.lttlewys.com/?p=2117

Categories: bewbluv, Breast Cancer, Cancer, Community, Friends, Me

I have been putting off this post, well, actually, I’ve written it out a few different times and in a few different ways and it never sounded right, never felt right. I have finally just decided it’s never going to … Read More

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I have been putting off this post, well, actually, I’ve written it out a few different times and in a few different ways and it never sounded right, never felt right. I have finally just decided it’s never going to sound or feel right.

I started chemo again, after a very long and complicated break, with much thanks and some amazing wonderful people, I was able to get into the right program (I’m unisured, remember) and start my chemo again.  And, damn, if it didn’t just kick my ass and throw me down.  It was horrible and tomorrow, I go again.  I can’t even tell you how much I am dreading it.  Each time, I think I’m ready for the drugs, that I am prepared, I’m not.

Sadly, I wish, the drugs were my only obstacle.  The reason, I have not shared or been open.  I have been hiding.  Hiding my shame, my anger and my bitter disappointment.  In myself.  Shame, that I’m not coping well with this last round of chemo, anger that my body, the meds are destroying everything.  Hiding while I try to figure who I am, what I am doing.  Disappointment is a funny thing, it becomes harsher as it’s directed at ourselves and our internal voices perceive it so largely the negative vibes can no longer be shaken off.

I never wanted to be consumed by my treatments, have my health and medical take the drivers seat in my life, yet, that is exactly what happened.  I realize that I am lucky, that this won’t last forever… In fact, I have one last treatment of the Red Devil and then I switch treatments and will be done with chemo mid-November!! Woot, rite?

Yes, that is a good thing. Only, I am struggling.  Struggling with what the drugs are doing to me, the ironies of the medicine that is supposed to be healing me, is slowly eating away at my mind, stealing what health my body had and is carving into the person that I am and turning me into someone I don’t know.   I don’t know who I am anymore.

The Chair

That is more frightening to me then the Cancer ever was.  It’s not about having “Chemo Brain” and forgetting milk at the store or lunch with a friend, it’s not about throwing up in the nearest trash can on 6th Ave or Central Park or in the Subway station ( actually, not as bad as it sounds, NY has lots of trash cans), it’s not even the fact that I “forget”to temper my tongue and speak my mind before I filter it.  I struggle with everyday things, with what my body tells me versus what my mind wants to do.  I can no longer tell what is the drugs and what is me.  I fight with myself constantly, pushing harder and then giving in. Tamping down feelings and temper tantrums, only to have a single outburst over a silly thing and crying jags.

It’s a lot, I’m going through a lot.  My mind acknowledges this.  My body hates it.  I despise it.  There is a lot of confusion in my head and a lot of screaming (as one’s inner voice can only do)!! There is no shame in my weakness, yet I am overwhelmed with it.  I turn down offers of help, not because I don’t appreciate them but because I don’t know what to do with them, I don’t know how to ask for what I am looking for… I don’t know!! Yea, that’s a lot of I don’t knows coz guess what… I don’t know and that is agonizing for me.

It is no longer enough to talk with my friends, to turn to twitter for amusement and cheering up.  I feel myself withdrawing, spending more time in my head and that is not a good thing.  I am spinning in this never ending tilt-a-whirl that is full of sickness and confusion.

Now, before, y’all get your knickers in a bunch and start in on me… I have already come to the conclusion that it’s time for help.  I’m crazy and while I occasionally do stupid things, I’m not dumb.  I, also, know it’s going to take some time to get my groove back and become balanced. That forevermore, my life is changed and change is good.  Even though currently, the changes are bleak and dismal.

I don’t know what is going to happen over the next few days, since I have chemo in the morning and I’m ok with that I’m well stocked in Jello and sprite (Both of which, I really, really don’t like) Hmmmm, I wonder if I could find someone to make me some Jello Jigglers maybe that would make it more palatable!!

Soo much fun!!

 

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